People living with Complex Regional Pain Syndrome (CRPS) experience frustration with the lack of knowledge and understanding of CRPS as a pain condition. In this case study, we explain how we worked with a group of people living with CRPS with the intention of helping them create a Wikipedia page about CRPS written by them, for people like them. We share what happened when our participants did not engage. We show you how we found a solution and, in so doing, show how you can be creative when facing research challenges, yet still meet the essence of the original goal of the research.