Engagement in a newly launched online support community for Complex Regional Pain Syndrome: Membership growth, header analysis and introductory messages

Smedley, R., Coulson, N., Gavin, J., Rodham, K. and Watts, L. (2016) Engagement in a newly launched online support community for Complex Regional Pain Syndrome: Membership growth, header analysis and introductory messages. International Journal of Web-based Communities, 12 (2). pp. 147-164. ISSN 1477-8394

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Abstract

Several studies have investigated forum engagement, with a small but growing body of research focussing on the number of people using a forum (membership growth), how they use it (header analysis) and how they introduce
themselves (introductory messages). Most studies use established forums and little is known about newly launched forums. This study examines engagement in a newly launched forum for complex regional pain syndrome. Results showed that membership growth occurred in bursts that were closely linked to promotional strategies. Header analysis showed the forum was used throughout the day, evening and night, with a focus on providing support as well as receiving it. Introductory messages took the form of disease stories with six themes: personal details, precipitating event, symptoms, treatment, living with CRPS, and reasons for joining. Implications and areas for future research are
discussed.

Item Type: Article
Uncontrolled Keywords: complex regional pain syndrome, CRPS, online support groups, patient interaction, membership growth, header analysis, introductory messages, thematic analysis, online communities, virtual communities, web based communities, forum engagement, user engagement
Subjects: B Philosophy. Psychology. Religion > BF Psychology
H Social Sciences > H Social Sciences (General)
Divisions: Academic Areas > Institute of Education, Social and Life Sciences > Psychology
Depositing User: Karen Rodham
Date Deposited: 11 Feb 2022 12:58
Last Modified: 11 Feb 2022 12:58
URI: https://eprints.chi.ac.uk/id/eprint/6078

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