Everard, C., Wade, R., Humphrey, K. D. and Day, M. C. (2026) The forgotten other: supporting the caregivers of people with limb absence during the hospital-to-home transition. Disability and rehabilitation. pp. 1-10. ISSN 1464-5165
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Abstract
Objectives: This study aimed to explore the interrelated nature of how caregivers of people with limb absence impact and are impacted by the hospital-to-home transition. Moreover, this study aimed to explore how caregivers can be better supported to fulfil their role.
Methods: A qualitative research study positioned within an interpretivist paradigm. Semi-structured interviews were conducted with 14 people with limb absence and 15 nominated caregivers. Data was analysed using a reflexive thematic analysis.
Results: Three themes were identified. (1) Lost in transition: Disconnection and divergence from hospital to home: Both service-users and caregivers described how caregivers were marginalised during the rehabilitation process, creating differing expectations regarding the service-users' functional abilities upon returning home. (2) Bearing the weight of unseen struggles: The impact of caregiving on the caregiver. Participants described the cumulative impact of caregiving on caregivers' physical and mental well-being. (3) Supporting the supporter: Participants highlighted informational, care continuity, communication, and social support gaps and described how such gaps could be addressed.
Conclusion: This study offers novel insights into the lived experiences of both caregivers and service-users in navigating the hospital-to-home transition and foregrounds how caregivers can be better supported. Centralising caregivers' perspectives can help ensure that they inform evidence-based initiatives to support integrated rehabilitation environments.
| Publication Type: | Articles |
|---|---|
| Additional Information: | © 2026 the author(s). |
| Uncontrolled Keywords: | limb absence, community physiotherapy, rehabilitation, qualitative, care-givers |
| Subjects: | B Philosophy. Psychology. Religion > BF Psychology H Social Sciences > HV Social pathology. Social and public welfare Q Science > QP Physiology R Medicine > RT Nursing |
| Divisions: | Academic Areas > Institute of Sport Research Entities > Centre for Health and Allied Sport and Exercise Science Research (CHASER) |
| Related URLs: | |
| SWORD Depositor: | Publications Router Jisc |
| Depositing User: | Publications Router Jisc |
| Date Deposited: | 10 Jun 2026 10:07 |
| Last Modified: | 10 Jun 2026 10:07 |
| URI: | https://eprints.chi.ac.uk/id/eprint/8643 |
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